In Telling Tales About Dementia, 30 carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: ‘I still find it hard to believe that Alzheimer’s has happened to us,’ writes one contributor, ‘as if we were sent the wrong script.’  

The stories are simply told and reflect a wide range of experiences, but with the common themes of love, anger, loyalty and the bewilderment that the world of dementia can foist upon us. Much of the value of this book lies in letting the carer know that he or she is not alone; that many of these experiences are common and that there is help available.  

Indeed, the stories contain hope and optimism among the sadness and fear: clear indications that the quality of people’s lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. 

A valuable book for anyone affected by the disease, whether in a professional context or through personal experience. 

Diana Melly, the wife of the jazz legend Goerge Melly, who had dementia in his final years, had this to say about the collection: “The stories of these carers – sisters, brothers, husbands, wives, lovers and friends – are not confined to the painful subject of dementia: the book is also about anger, loss, love and loyalty. It’s both powerful and moving.” 

You can purchase the book by clicking on this link